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by June Kinoshita, FSHD Society “Nothing about us without us” has been the mantra of disability rights advocates for decades, but when it comes to Hollywood, the number of feature […]
A complementary approach for FSHD therapeutics by Justin Cohen, New Haven, Connecticut This is an exciting time for facioscapulohumeral muscular dystrophy (FSHD) patients, with many therapeutics entering clinical trials. Most […]
by Kathryn Wagner, MD PhD I lost my dear friend, Lilleen Walters to FSHD in August. Lilleen and I met approximately 20 years ago when she and her young son, […]
They’re now more affordable and available by Richard Holmes, Sandwich, Massachusetts If you’re straining to hear what people say, or find yourself cranking up the volume on your TV to […]
A space-age solution for eating soup by Amy Bekier, San Diego, California Hello, my fellow slurpy, sloppy FSHD superhero eaters! For many of us with FSHD, as our hands, wrists, […]
