A transformative force for the FSHD Society by June Kinoshita, FSHD Society Judy Seslowe, whose life was marked by compassion, leadership, and unwavering commitment, passed away on April 13,… Read More »
A tribute to Judy Seslowe
Hope in the laboratory
Taking back control of my destiny through research BY HELOISE HOFFMANN, STANFORD UNIVERSITY For the past year, I have been working alongside a team of fellow undergraduates at Stanford University… Read More »
Epicrispr Biotechnologies achieves milestones in developing groundbreaking therapy for FSHD
Epicrispr Biotechnologies, a South San Francisco-based biotech company, has announced two major advancements in its mission to develop transformative therapies for genetic diseases. The company secured $68 million in Series… Read More »
Aiming to access fresh funding for FSHD research
We need YOU – to write to your senators by Anna Gilmore, FSHD Society Last year was an exciting one for our community as we launched our first FSHD Day… Read More »
Using HIPAA to Make Sure You Are Treatment Ready
by William Saraille, Washington DC We hope we that in the not-too-distant future, treatments for FSHD will be approved by the Food and Drug Administration. But when that time comes,… Read More »