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Dear Friends of the Ghostly Gala to Vanish FSHD, Thanks to your enthusiastic and generous support, the Ghostly Gala has quickly become a beloved Halloween event, whose impact is being […]
LISTEN LIVE ON WEDNESDAY, SEPTEMBER 27, 2017, HERE. A podcast of the interview will be available at this link. This month’s radio show guest is Steven Blier, a pianist and […]
Meet the newest addition to the Anson Calder collection: The Cash Wallet in FSHD Orange! In recognition of FSH muscular dystrophy (FSHD), Anson Calder designed the Cash Wallet in the […]
Co-founder and Former CEO Daniel Paul Perez to continue with the FSH Society as Chief Science Officer LEXINGTON, Massachusetts – William R. Lewis Sr. M.D., chairman of the Board of […]
Fox 25 Boston recently shared the Pappas family’s journey with FSHD and youngest member, Lexi Pappas’ touching short documentary. Lexi Pappas of Natick, MA was diagnosed with the disease in […]
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