Our look is new. Our purpose is the same. Learn more about our brand evolution.
FSH Society ambassador Lexi Pappas has just completed her first film documentary, based on her family’s multigenerational experience living with facioscapulohumeral muscular dystrophy. We learn how FSHD affects individual members of her […]
Thank you to Missy Cassidy for submitting the request to the Governor’s office! Next year, let’s go for proclamations in all 50 states!
DONATE TO HELP TEAM FSHD CYCLING’S CROSS ITS FUNDRAISING FINISH LINE!! We are more proud than we can say to have Team FSHD Cycling embark today on the 3,000-mile Race […]
We are proud and honored to announce that our PR/marketing partner SHIFT Communications earned a Publicity Club of New England Bell Ringer Award! A Silver Bell was awarded for […]
Lynnette Rasmussen OTRL provides detailed, hands-on demonstrations of a variety of gentle exercises targeting specific muscles. Developed in collaboration with an FSH muscular dystrophy patient, these exercises demonstrate principles that […]
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