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FSHD Stories: No more hiding

FSHD Stories: No more hiding

By Lexi Pappas [youtube=https://www.youtube.com/watch?v=C8qyAHqydGs] Every year my school holds a public speaking colloquium where over 50 people participate. It is a competition for students to prepare a 3 minute speech […]

Dave Lukas

The last one in

Volunteering for research, feeling the weight of responsibility By David Lukas, Village of Lakewood, Illinois I was diagnosed with FSHD in April 2015. In October 2015, I participated a clinical […]