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News

Home / Blog

Twitter blows up for Phil’s Jam

August 30, 2019 Pinned Post Leave a Comment

The first annual “Phil’s Jam for FSH” drew a crowd of music lovers to the Wild Wing Cafe in Franklin, Tennessee, last night. Using the occasion to generate awareness about… Read More »

Filed Under: Fundraising & Events Tagged With: benefit concert, charities, FSH muscular dystrophy, FSHD, fundraising events, social media

Lives touched by FSH muscular dystrophy

February 2, 2021 Pinned Post Leave a Comment

Filed Under: Living with FSHD Tagged With: FSH muscular dystrophy, FSHD, patient stories, rare disease advocacy, Video

Progress in 2013

February 2, 2021 Pinned Post Leave a Comment

After wrapping up what was a busy first month of 2014, we finally have a moment to look back on 2013 and acknowledge what a busy – and successful –… Read More »

Filed Under: FSHD Research, FSHD Society News Tagged With: charities, charity benchmarks, rare disease advocacy, Research breakthroughs

First FSH Muscular Dystrophy High-Throughput Drug Discovery Study Published

February 2, 2021 Pinned Post Leave a Comment

From PRWeb press release, February 6, 2014. In research funded by the FSH Society, a patient advocacy organization, a Minnesota team has identified drugs that block the toxic effects of… Read More »

Filed Under: FSHD Research, FSHD Society News Tagged With: Antioxidants, Drug screening, FSH, FSH muscular dystrophy, FSHD, rare disease advocacy, Research breakthroughs

FSH Watch Winter 2014

February 2, 2021 Pinned Post Leave a Comment

Highlights include: Report from the 2013 International Research Consortium meeting in Cambridge, Massachusetts. Advances in basic research, clinical trials and future drug targets. Introducing our new Celebrity Honorary Board. Stars… Read More »

Filed Under: FSHD Society News Tagged With: clinical trials, FSH, FSH muscular dystrophy, FSHD, newsletter, patient stories, Patient support groups, Research breakthroughs, Science

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