Our look is new. Our purpose is the same. Learn more about our brand evolution.
Carden Wyckoff, who is featured in the #CureFSHD Campaign, will be participating with her brother Spencer in the Spartan Race and Obstacle Course in the Atlanta area. Carden and her family […]
The FSH Society is excited to announce that today we will be kicking off our new campaign, #CureFSHD! The purpose of the campaign is to spread awareness and educate people […]
By Mia Archuleta, Granbury, Texas I have been thinking about people wondering exactly how the FSHDselfies have brought awareness to FSH dystrophy. Here are just a few examples of my […]
Highlights include: Summary of our 2014 FSHD Connect Conference held in Boston. Senator Elizabeth Warren addresses the 2014 FSHD Connect Conference. The essential role epigenetics plays in FSHD. Meet the new […]
We note the three-year anniversary of Carol Anne Perez’s death at age 76, on February 3, 2012, from respiratory complications of FSHD. Many patients remember Carol as the person on the […]
