The FSH Society is excited to announce that today we will be kicking off our new campaign, #CureFSHD! The purpose of the campaign is to spread awareness and educate people about FSHD. We will begin sharing impactful photographs of people with FSHD overlaid with little-known facts, warning signs and impacts of FSHD. Each day, on our Twitter handle, @FSHSociety, we will release a new photo to teach the public about the realities of this disease. We will promote the campaign over our social media channels and we encourage everyone to participate.
As Carlos Romero, a national champion paraclimber with FSHD from Seattle, notes: “These images show the pain and struggle we fight through on a daily basis. It is such a simple task to share these images over social media; however, the impact it will have and the awareness they will bring to FSHD is truly remarkable.”
How to participate (two options):
- Go to the FSH Society’s Twitter (@FSHSociety), Instagram and/or Facebook page each day to repost or retweet the featured photograph.
- Visit the campaign landing page and choose your favorite images to share on your social pages.
We can broaden our reach even further with the help of all of you! Please encourage your friends and family to participate in the campaign and share the images that impact them. Help us spread awareness about the symptoms and facts about FSHD and set us on the path to #CureFSHD!
Twitter: @FSHSociety
Facebook: facebook.com/FSHSociety
Instagram: instagram.com/fshsociety/
Photos for the #CureFSHD campaign by Romana Vysatova.
I’m very proud that my picture has been chosen for FSH society campaign !
Sylvie from FSH group AFM France