Blog

Women’s health with Dr. Loralei Thornberg

In December, our Women on Wellness Zoom group hosted Loralei Thornberg, MD, an ob/gyn at the University of Rochester. She is a rock star! She addressed issues in women’s health […]

Your practical guide to clinical trials

The FSHD Navigator

So you don’t have to journey by yourself by Anna Gilmore, FSHD Society At the FSHD Society, the families we serve always come first. With that in mind, we are […]

FSHD advocate in film about Apple Personal Voice

A new short film directed by Academy Award-winning New Zealand filmmaker Taika Waititi features Dr. Tristram Ingham, a physician and disability advocate living with FSHD. The film was made in […]

The children of FSHD – they exist, too

One community – united effort – cure for all by Ally Roets, Tucson, Arizona A few years ago, as we started to hear about clinical trials for promising new drugs […]