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Yesterday, the FSH Society convened a landmark meeting at the Tommy Douglas Conference Center, a stone’s throw from the headquarters of the Food and Drug Administration (FDA). Several FDA regulators […]
From PRWeb The FSHD Society and Skyland Trail today announce that they are jointly entering an eight-person team in the 2019 Race Across America (RAAM) to raise funds for their respective causes. The two […]
We are honored that you chose to support us. FSH muscular dystrophy, a debilitating disease affecting nearly a million men, women, and children worldwide, has long lacked any treatment, but […]
The FSHD Clinical Trial Research Network (CTRN) has expanded to eight sites in the U.S. with the addition of Virginia Commonwealth University (VCU) in Richmond, Virginia. The VCU site is […]