Connecting generosity with purpose
Carolyn Lloyd’s journey as chief development officer of the FSHD Society reflects her lifelong commitment to service and empathy for those affected by chronic illness. Her role as a caregiver […]
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Carolyn Lloyd’s journey as chief development officer of the FSHD Society reflects her lifelong commitment to service and empathy for those affected by chronic illness. Her role as a caregiver […]
Finding a way around all obstacles by June Kinoshita, FSHD Society One lesson Michelle Mellion, MD, absorbed from seeing patients at a Muscular Dystrophy Association (MDA) neuromuscular clinic is that […]
Avidity begins Cohort C enrollment in FORTITUDE trial Avidity Biosciences has begun enrollment of Cohort C of the Phase 1/2 FORTITUDE™ clinical trial. Below is Avidity’s letter to the FSHD […]
by June Kinoshita, FSHD Society “Nothing about us without us” has been the mantra of disability rights advocates for decades, but when it comes to Hollywood, the number of feature […]
Fulcrum halts losmapimod development by June Kinoshita This morning, we received news Fulcrum has decided to halt its development of losmapimod (see press release below). Fulcrum’s decision was based on […]