by Jenny Gast, National Director, Chapter Programs, FSHD Society What makes our chapter network so meaningful isn’t the size of the events, but the spirit within them. This summer, each […]
by Beth Johnston Earlier this month, we added the 4th Canadian Chapter to the roster of our growing FSHD Communities! The Quebec Chapter is led by father/son duo Sylvain and […]
by Kim Shanley We’re only halfway through 2025, and it’s already been an incredible year for our DIY and endurance community at the FSHD Society. Kicking things off, Michael Ahlers […]
By June Kinoshita, FSHD Society It is with deep sadness and gratitude that the FSHD Society honors the memory of beloved community member and long-time volunteer, Ann Biggs-Williams, who passed away […]
By Amanda Hill Sr. Director of Research & Care, FSHD Society Since we launched BetterLife FSHD in August 2024, the innovative platform has provided people living with FSHD in the […]
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