Our look is new. Our purpose is the same. Learn more about our brand evolution.
Last weekend, January 25-27, 2019, a force descended upon the Chicago O’Hare airport. And we’re not talking about the Polar Vortex. Twenty-nine chapter directors and Walk & Roll leaders convened […]
The FSHD Society today announced that Jamshid Arjomand, PhD, has joined the organization as its Chief Science Officer. The Society is the world’s largest research-focused patient advocacy organization for facioscapulohumeral […]
You’ve made a difference and we are grateful As the year draws to a close, all of us at the FSH Society wish you Happy Holidays and thank you for […]
This year-end webinar by FSHD Society CEO Mark Stone is a must watch. He lays out our detailed strategy that will get treatments for FSHD to our families by the […]
