English
Spanish
French
German
Italian
Dutch
Russian
Chinese (Simplified)
Japanese
Hindi
Hebrew
Portuguese
“For all my friends and family out there who haven’t heard, I have recently been diagnosed with FSHD which is a form of muscular dystrophy. It is a progressive disease… Read More »
Chicagoland chapter members invite you to their Walk & Roll to Cure FSHD!
Our inaugural volunteer leadership summit
Last weekend, January 25-27, 2019, a force descended upon the Chicago O’Hare airport. And we’re not talking about the Polar Vortex. Twenty-nine chapter directors and Walk & Roll leaders convened… Read More »
Walk Pioneers Lead the Way!
This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast. These Volunteer Leaders… Read More »
Walking & Rolling Toward a Cure!
We are excited to announce the launch of our first nationally branded event, the Walk & Roll to Cure FSHD. This signature fundraising event will take place in September… Read More »
With a Sense of Urgency
When Katie Ruekert reached out to the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy (FSHD), she gained a new sense of purpose. Her husband… Read More »