Our look is new. Our purpose is the same. Learn more about our brand evolution.
YOU are the driving force that enables the FSH Society to support & empower families, and to fund groundbreaking research to find treatments and a cure! Celebrate World FSHD Day […]
We are excited to announce the launch of our first nationally branded event, the Walk & Roll to Cure FSHD. This signature fundraising event will take place in September […]
Dear Friends, At the FSH Society, our moonshot is to get to a treatment for FSHD―an intervention that will slow or halt the muscle deterioration. We have set a target […]
We’re excited to share with you the preliminary agenda for our 2018 FSHD Connect conference, where a coalition of patient and families, top researchers and clinicians, and advocates will gather […]
This year, to celebrate Rare Disease Day, taking place on Wednesday, February 28, we will be hosting a viral photo and video challenge! Share your rare talents and help us […]
