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Make dinner a selfless act by joining us for a fundraiser to support the Walk & Roll to Cure FSHD! Just come into the Chipotle at 5642 Allen Way, Space 104 in Castle Rock, […]
By Amy Bekier, San Diego, California On July 30, 2016, twenty-five FSHD patients, family and scientists assembled at Genea Biocells in La Jolla, California, to hear presentations by senior scientists […]
This year marks the final year that Michelle and Dave Mackay will have the Lake Party at their Michigan home, as it has been sold. They will host a thank you party at […]
Bob Louden, organizer of the monthly Western Washington patient support group, had to cancel his planned Border 2 Border motorized wheelchair ride this summer due to an unexpected surgery, but […]
This week, Spencer Wyckoff competed on NBC’s “American Ninja Warrior” to raise awareness and funds for the FSH Society. Before taking the course, Spencer and his sister, Carden, described their family’s […]
