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Are you eager to meet other patients and learn about the latest research? Several meetings are being planned for next month. Find out if there’s one near you: April 12, 2015 […]
Carden Wyckoff, who is featured in the #CureFSHD Campaign, will be participating with her brother Spencer in the Spartan Race and Obstacle Course in the Atlanta area. Carden and her family […]
Support the FSH Society simply by shopping on AmazonSmile! It’s easy and doesn’t cost you a cent extra. When shopping on Amazon, simply do it through the AmazonSmile portal (smile.amazon.com). The first time you […]
Here are the slide decks from the 2014 FSHD Connect conference. We are still missing a few and are working to complete the collection. Alexandra Belayew: Several ways to go […]
2014 FSHD Connect, the FSH Society’s biennial international conference of patients, families, researchers and clinicians, was held in Boston on August 16-17th. Over 200 people attended, the largest such gathering to […]
