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Know the difference by Amanda Hill, FSHD Society In your journey with FSHD, you’ve probably heard about the importance of seeing your doctor regularly. You also most likely have heard […]
There are already many effective interventions by Nicol Voermans, MD PhD, Radboud University Medical Center We hear that currently there is “no cure for FSHD,” but this does not mean […]
Tips and tricks from our Women on Wellness Zoom group’s October meeting on Adaptive Cooking and Adaptive Eating. Notes by Helen Cave and Ranae Beeker, RN. One member has reorganized […]
I have never met most of you, but you are all my village by Brian Jude Loiacono When I reflect back on my life playing all kinds of sports in […]
Sharing with fellow MD patients is a chance to learn and impart what we know by Robin Stemple. Reprinted with permission from Muscular Dystrophy News Today. I’ll admit that I […]
