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by Peter Blackburn, South Africa FSHD group I have two of the Ottobock 5055 Acro Comfort braces. These are joined at the back with velcro tape (my personal touch to […]
by Haviva Ner-David, Kibbutz Hannaton, Israel WHEN I WAS diagnosed, aside from recommending swimming, the doctor told me and my mother there was an organization I could join called the […]
How I got my local hospital to make accommodations for me by Diane Pappas, Gloucester, Massachusetts You don’t realize there is a problem with something until you experience it yourself. […]
by Ranae Beeker, RN The Women on Wellness (WOW) group, a group of women who personally share the challenges of FSHD meets on the first Wednesday of the month (2P […]
Our FSHD University webinar on January 27, 2022, was a revelation! We learned that the muscle weakness that causes scapular winging can lead to maladaptive, compensatory movements which themselves can result […]
