Our look is new. Our purpose is the same. Learn more about our brand evolution.
by Haviva Ner-David Part III of excerpts from Rabbi Ner-David’s book, Dreaming Against the Current I AM A tour guide for a large synagogue group visiting Israel, getting on and […]
by Allison Calder, Salt Lake City, Utah This year, the Volunteer Leadership Summit came at just the right time for me. I had hit a slump as a chapter leader, […]
by Haviva Ner-David Part II of excerpts from Dreaming Against the Current. I decided to talk directly to my disease. After thirty-two years, it was about time. “Are you willing […]
by June Kinoshita, Director of Research and Patient Engagement Making sure that every person with FSH muscular dystrophy gets the best possible medical care is a high priority for us. […]
by Brian Jude Loiacono As I reflect back at the year 2021, I’m sure we all can agree that with the pandemic still prevalent in all of its variants, our […]
