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Learn, let go, and find beauty in new places By Meredith L. Huml, Raleigh, North Carolina As a muscular dystrophy sufferer—I was diagnosed with FSHD at Duke University’s Muscular Dystrophy […]
On November 4th, fourteen members of the Sacramento FSH Society Support Group met at Louie’s restaurant for lively discussion, fun and good Chinese food. We were joined by John Dorsett, M.D. of […]
Live Facebook Q&A session Friday, November 13 10:30-11:00 AM Pacific Time Mark you calendar for this real-time Q&A session with Julie Hershberg PT, DPT, NCS. She will be on the […]
By June Kinoshita When I attended the Los Angeles Ghostly Gala last week, I met an extraordinary woman, Donna Russo, an actress and dancer with FSH muscular dystrophy. Donna told me […]
The Ghostly Gala, the first-ever fundraising gala in Los Angeles for the FSH Society, has scored another coup with the donation of a collection of stylish, exquisitely crafted leather accessories from […]
