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The Atlanta chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.
Join your local chapter and learn how we can support you on your FSHD journey.
Jack Gerblick is the Chapter Director for the Atlanta Chapter of the FSHD Society and has been living with FSHD since 1991. His personal experience with the condition drives his passion to support others in the FSHD community.
In addition to leading the Atlanta Chapter, Jack is also the Chair of the Community Engagement Committee for the FSHD Society, where he works to build connections and raise awareness of the disease. Through his volunteer efforts, Jack aims to strengthen the FSHD network, offer support, and help those impacted by the condition find a sense of community and hope.
While Jack is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.
We’re excited to pilot a new regional meeting format designed to bring more of our FSHD community together. This meeting is for the East Coast and will cover general updates and include regional breakout sessions.
The Walk & Roll to Cure FSHD is the FSHD Society’s largest, annual fundraiser raising awareness and funds for treatments and a cure for FSHD.
