Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
The Kansas City Chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.
Join your local chapter and learn how we can support you on your FSHD journey.
Michaela is a Research Project Manager with over ten years of experience in Neurology and holds a Master of Public Health degree with an emphasis in Epidemiology from the University of Kansas Medical Center. She works in the Neuromuscular Research Division alongside Dr. Jeffrey Statland and is the Chapter Director for the Kansas City Chapter. Michaela also leads the FSHD Clinical Trial Research Network (FSHD CTRN), overseeing all studies within the network.
Passionate about multi-center clinical trials, Michaela is committed to patient education, advocacy, and improving care and treatment options. Her leadership in both the Kansas City chapter and FSHD CTRN helps her make a meaningful impact on healthcare and improve the lives of patients.
Contact Michaela & Patrick directly or visit the Heartland Facebook page.
Patrick McKenney is the administrative assistant for Dr. Statland in the Neuromuscular Research Department at the University of Kansas Medical Center, where he has worked for over three years. He holds a Master of Science in Applied Mathematics and Statistics from DePaul University, supporting research and administrative tasks within the department.
As co-director of the Kansas City Chapter, Patrick is committed to advancing research and supporting the community. His leadership helps improve patient care, advance research initiatives, and contribute to the overall growth of the field, making a meaningful impact on both the community and healthcare outcomes.
Contact Michaela & Patrick directly or visit the Heartland Facebook page.
While Michaela & Patrick are powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.
