5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Kayleigh Worek from the BetterLife FSHD team will take us on a tour of this cutting-edge health and research platform and answer your questions. Join in and hear more about how BetterLife works, what it does, and how it can […]

Feeling Fit with FSHD 18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join Donna Russo for a session of chair yoga. Donna has FSHD and uses a power wheelchair. She has adapted a variety of yoga positions and exercises that […]