Young Adults Monthly Meeting 8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT FSHD Young Adults is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect, collaborate, and provide networking opportunities. Whether you’re […]

Parents' Roundtable: FSHD history & evolution, a discussion with June Kinoshita 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Our guest this month is June Kinoshita, Senior Director of Research and Education at the FSHD Society. June, who is stepping down from the Society at the end of […]

Feeling Fit with FSHD 18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Ranae Beeker and Frank Hanley team up to present a summer safety workshop. This workshop will discuss water safety, walking and hiking, driving and travel, water (hydration) and […]