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FSHD University

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Today

February 2023

Tue 14
Featured Featured Feb 14 @ 1:00 pm - 2:00 pm

FSHD University: FORTITUDE A Phase 1/2 Clinical Trial of AOC 1020 in Adults with FSHD

Zoom Web Conference , United States

Learn about the FDA's recent fast track designation for Avidity's FSHD therapeutic here. 1:00 pm ET | noon CT | 11:00 am MT | 10:00 am PT | 18:00 GMT... Read More »

Thu 23
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Featured Featured Feb 23 @ 2:00 pm - 3:00 pm

FSHD University – Rita Perlingeiro on stem cell research

1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT | 18:00 UK | 19:00 CET Dr. Rita Perlingeiro Our webinar speaker is Dr. Rita... Read More »

March 2023

Thu 23
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Featured Featured Mar 23 @ 1:30 pm - 2:30 pm

FSHD University: Novel treatment strategies for FSHD

Zoom web conference , United States

1:30 PM ET | 12:30 PM CT | 11:30 AM MT | 10:30 AM PT Nizar Saad, PhD Nizar Saad, PhD is an assistant professor at the Center for Gene... Read More »

May 2023

Thu 4
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Featured Featured May 4 @ 1:00 pm - 2:00 pm

FSHD University: MANOUEVRE clinical trial

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT In October 2022, Roche/Genentech shared with us plans to initiate a new trial called MANOEUVRE. This... Read More »

Thu 18
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Featured Featured May 18 @ 1:00 pm - 2:00 pm

FSHD University: What every newly diagnosed person should know

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Bakri Elshiekh We want to make sure that newcomers to the FSHD community have an... Read More »

July 2023

Thu 20
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Featured Featured Jul 20 @ 1:00 pm - 2:00 pm

FSHD University – Epic Bio’s FSHD Program

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Epic Bio, a San Francisco based therapeutics company, is developing a gene therapy medicine specifically for... Read More »

August 2023

Thu 24
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Featured Featured Aug 24 @ 1:00 pm - 2:00 pm

FSHD University – FSHD Experiences: Insights from Europe

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Megan McNiff Our speaker is Megan McNiff, a research associate from the John Walton Muscular Dystrophy... Read More »

September 2023

Thu 21
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Featured Featured Sep 21 @ 1:00 pm - 2:00 pm

FSHD University – Physical Therapy for Shoulder Issues in Kids

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Maaike Pelsma Join Maaike Pelsma, a pediatric physical therapist, to learn about shoulder dyskinesia in children... Read More »

October 2023

Thu 19
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Featured Featured Oct 19 @ 1:00 pm - 2:00 pm

FSHD University: MOVE and MOVE+ Update

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Michaela Walker NOTE: Date has been changed from July 20 to October 19. MOVE and MOVE+... Read More »

November 2023

Thu 16
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Featured Featured Nov 16 @ 1:00 pm - 2:00 pm

FSHD University – Project Mercury and patients’ access to treatments

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Josie Godfrey There is great progress toward new medicines for FSHD, but even when a drug... Read More »

December 2023

Thu 21
FSHD University Logo
Featured Featured Dec 21 @ 1:00 pm - 2:00 pm

FSHD University – Annual drug development update

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Nicholas Johnson Every year, we bring you an update on therapy development for FSHD. What... Read More »

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