Lighting the Way to a Cure

Pacific Northwest Chapter Meeting

Virtual Denver

Pacific Northwest Chapter Meeting Sunday, May 1, 2022 12:00PM PT Please join us for a virtual meeting for a discussion of nutrition supplementation from a holistic nutrition approach. Our speaker... Read More »

North Texas Chapter Kick Off Meeting

Farmers Branch Rec Center 14050 Heartside Place, Farmers Branch, TX

North Texas Chapter Kick Off Meeting! Saturday, May 7th, 2022 1:00pm-3:00pm Central Time Farmers Branch Rec Center The Oak Room 14050 Heartside Place Farmers Branch, TX Please join us for... Read More »

New England Chapter Meeting

Connecticut Virtual Meeting https://zoom.us/j/442453571, Or Telephone: 669-900-6833, Meeting ID: 442 453 571, CT

Wednesday, May 11th, 2022 7pm ET | 6pm CT | 5pm MT | 4pm PT We hope you can join us for the next virtual meeting of the New England... Read More »

All California Chapter Meeting

Virtual TX

All California Chapters Meeting Resiliency in Living with FSHD Sunday, May 15th, 2022 2:00pm Pacific Time Please join us for Part 2 of Resiliency in Living with FSHD. Our guest speakers,... Read More »

Mid-Atlantic Trivia Night

Mid-Atlantic DC

Trivia Night, hosted by the Mid-Atlantic Chapter Sunday, May 15th 2022 7pm ET | 6pm CT | 5pm MT | 4pm PT Via Zoom (link to be provided to registered... Read More »

St. Louis Connection Event

BC's Kitchen in the Meadows of Lake St. Louis 11 Meadow Circle Drive, Lake St. Louis, MO

St. Louis In-Person Chapter Meeting Saturday, June 4th, 2022 11:30am Central Time BC's Kitchen in the Meadows of Lake Saint Lewis 11 Meadow Circle Drive, Lake St. Louis, MO 63367... Read More »

Ontario Chapter Lab Tour and Meeting

Children's Hospital of Eastern Ontario Ottawa, Ontario

Lab Tour & Meeting Saturday June 11th, 2022 12:30pm - 3:00pm ET Children's Hospital of Eastern Ontario (CHEO) Ottawa, ON The Ontario Chapter of the FSHD Society invites you to... Read More »

29th Annual International Research Congress

Waldorf Astoria and Hilton Bonnet Creek 14200 Bonnet Creek Resort Lane, Orlando, FL

The FSHD Society’s annual FSHD International Research Congress is the premier global scientific conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. The IRC is open to all active researchers... Read More »

2022 FSHD Connect

Orlando, FL orlando, FL

FSHD Connect is the FSHD Society's flagship educational conference. Held every two years, it is the world's biggest networking event for FSHD, bringing together hundreds of individuals and families living... Read More »

Pacific Northwest Connect Watch Party

Boeing Museum of Flight 9094 E. Marginal Way S, Seattle, WA

FSHD Society Connect Watch Party Saturday, June 18th, 2022 9:00am - 3:00pm Pacific Time Boeing Museum of Flight 9094 E. Marginal Way S Seattle, WA South View Lounge Join us... Read More »

Colorado Chapter “Watch Party”

Southglenn Library 6972 S. Vine St., Centennial, CO, CO

Colorado Chapter "Watch Party" Saturday, June 18th, 2022 10am - 2pm MT Southglenn Library - Meeting Rooms A&B 6972 S Vine St, Centennial, CO 80122 As you may have heard,... Read More »

World FSHD Day

Every June 20th, people around the world join in activities to raise awareness for Facioscapulohumeral muscular dystrophy (FSHD) through World FSHD Day. Visit our World FSHD Day page for ideas of... Read More »

Western PA Virtual Chapter Meeting

Virtual Denver

Wednesday, June 29th 6pm ET We hope you will join us for the next meeting of the Western PA Chapter! We will discuss takeaways from the recent Patient Connect conference,... Read More »

San Diego Chapter Meeting

115 South Clementine Street 115 South Clementine Street, Los Angeles, CA

San Diego Chapter Meeting Saturday, July 16, 2022 11:30am-1:30pm Pacific Time 115 South Clementine Street Oceanside, CA 7th Floor Meeting Room Please join us for a potluck lunch! We will be... Read More »

New England Chapter Summer Picnic

New England Air Museum 36 Perimeter Road, Windsor Locks, CT

New England Chapter Summer Picnic Saturday, July 16th 12pm – 4pm (in-person only) New England Air Museum 36 Perimeter Road Windsor Locks, CT 06096 We hope that the entire New... Read More »

Western PA FSHD Family Picnic

Adams Township Community Park 698 Valencia Rd, Mars, PA

FSHD Family Picnic Saturday, August 6th 12pm – 4pm ET Adams Township Community Park 698 Valencia Rd Mars, PA 16046   Please mark your calendars for the annual summer gathering... Read More »

2022 Pacific Northwest Walk & Roll to Cure FSHD

Town Square Park 31600 Pete von Reichbauer Way S,, Federal Way, WA

Please mark your calendars for the 2022 Pacific Northwest Walk & Roll to Cure FSHD! We will see you on Saturday, September 10, 2022 Please reach out to the Walk Leader,... Read More »

2022 Colorado Walk & Roll to Cure FSHD

Philip S. Miller Park Amphitheater 210 East Wolfensberger Road, Castle Rock, CO

Please mark your calendars for the 2022 Colorado Walk & Roll to Cure FSHD! We will see you on Sunday, September 11, 2022 Please reach out to the Walk Leader, Anne... Read More »

2022 Intermountain Walk & Roll to Cure FSHD

Canyon Rim Park East Pavillion 3100 S Grace Street, Millcreek, UT

Please mark your calendars for the 2022 Intermountain Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Kathryn... Read More »

2022 International Walk & Roll to Cure FSHD

Virtual TX

Please mark your calendars for the 2022 International Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to us, with any questions!  Info@FSHDSociety.org.... Read More »

2022 Columbus Walk & Roll to Cure FSHD!

Coffman Park Pavillion 5200 Emerald Pkwy, Dublin, OH

Please mark your calendars for the 2022 Columbus Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Chapter Director, Sue... Read More »

2022 Ontario Walk & Roll to Cure FSHD

Lake Aquitaine Park 6655 GLEN ERIN DR, Mississauga, Ontario

Please mark your calendars for the 2022 Ontario Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Steve... Read More »

2022 Dakotas Walk & Roll to Cure FSHD

Urban Plains Park 3020 51st Street, Fargo, ND

Please mark your calendars for the 2022 Dakotas Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Walk Leader, Bryan... Read More »

2022 St. Louis Walk & Roll to Cure FSHD!

Hawk Ridge Park 8392 Orf Road, Lake St. Louis, MO

Please mark your calendars for the 2022 St. Louis Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to the Chapter Director,... Read More »

2022 South Carolina Virtual Walk & Roll

South Carolina SC

Please mark your calendars for the 2022 South Carolina Virtual Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out to Walk Leader,... Read More »

2022 Philadelphia Virtual Walk & Roll

Philadelphia PA

Please mark your calendars for the 2022 Philadelphia Virtual Walk & Roll to Cure FSHD! We will see you on Saturday, September 17, 2022 Please reach out with any questions! Wecan... Read More »

2022 Minnesota Walk & Roll to Cure FSHD

Mount Normandale Lake Bandshell 5901 West 84th Street, Bloomington, MN

Please mark your calendars for the 2022 Minnesota Walk & Roll to Cure FSHD! We will see you on Sunday, September 25, 2022 Please reach out to the Chapter Director, Jacob... Read More »

2022 Atlanta Walk & Roll to Cure FSHD!

Chattahoochee Nature Center Ben Brady Lakeside Pavilion 9135 Willeo Rd, Roswell, GA

Please mark your calendars for the 2022 Atlanta Walk & Roll to Cure FSHD! We will see you on Sunday, October 16, 2022 Please reach out to the Chapter Director, Jack... Read More »

2022 Western PA Drum and Roll

Andrew Carnegie Free Library and Music Hall 300 Beechwood Avenue, Carnegie, PA

The Western PA Drum & Roll Mark your calendars: The second annual Drum & Roll will take place on Saturday, November 5th, 2022! We invite you to join us in raising... Read More »