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This is YOUR university! Join us every 3rd Thursday for our monthly FSHD University webinar, where you’ll hear from different experts in the community to help you on your path with FSHD.
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Learn the best ways to stay active, manage your symptoms, and take care of your body with FSHD! From medical care to physical therapy and exercise, find tips to help you feel your best.
Living with FSHD can be challenging, but your mental health matters too! Discover ways to manage stress, handle life’s ups and downs, and find joy in everyday moments.
The more you know about FSHD research, the more you can take charge of your care and even help shape the future of treatments.
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who […]
Virginia Chapter Monthly Virtual Meeting 6:00pm – 7:00pm ET, every 4th Tuesday of the month Virtual via Zoom – RSVP for the link DETAILS: Join us for our monthly meeting […]
8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT This monthly meeting is for those of you who are providing care to loved ones with […]
