FSHD University is your center for education about the art and science of living with FSH muscular dystrophy.
We focus on three "departments" – Physical Health, Wellness, and Research – drawing on the many resourceful, creative people in our community who have earned their MDs and PhDs in living with FSHD. Over time, we expect to establish new departments to address additional areas where we see a thirst for knowledge. Your input and suggestions are very much welcome.
This is YOUR university!
FSHD University: MANOUEVRE clinical trialZoom Web Conference
1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT We have invited a speaker from Hoffman-LaRoche to describe its MANOUEVRE clinical trial for FSHD. The... Read More »
FSHD University: What every newly diagnosed person should knowZoom Web Conference
1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Bakri Elshiekh We want to make sure that newcomers to the FSHD community have an... Read More »
FSHD University: MOVE and MOVE+ UpdateZoom Web Conference
1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT MOVE and MOVE+ are the largest natural history studies to date of FSHD. Our webinar will... Read More »
Best practices in medical care, physical therapy, and exercise for FSHD can improve health and overall function in many individuals.
Disability and unpredictability take a toll on mental health and well-being. Learn how to manage stress and anxiety and find happiness.
Understanding research can guide best practices in care and empower you to engage in impactful ways with research and drug development.
FSHD University video playlist
Information provided by the FSHD Society does not imply an endorsement of any of the drugs, procedures, treatments, or products discussed. Please consult your own healthcare provider about any medical interventions.