
If you are a patient or family member, FSHD University is your center for education about the art and science of living with FSH muscular dystrophy.
We focus on three "departments" – Physical Health, Wellness, and Research – drawing on the many resourceful, creative people in our community who have earned their MDs and PhDs in living with FSHD. Over time, we expect to establish new departments to address additional areas where we see a thirst for knowledge. Your input and suggestions are very much welcome.
This is YOUR university!
FSHD University – Resilience and FSHD
Zoom Web Conference1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Kent Drescher, PhD Dealing with life’s slings and arrows alongside FSHD may feel like a lot,... Read More »
FSHD University: Exercise and Nutritional Interventions for the Treatment of FSHD
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT Mark Tarnopolsky, MD PhD Join us for a talk by Mark Tarnopolsky, MD PhD, Professor... Read More »
FSHD University: Bowel and urinary issues in FSHD
1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT Join Drs. Michael Cole, Kathy Mathews, Christopher Cooper, and Eyad Hanna, of the University of... Read More »
Departments
Physical Health

Best practices in medical care, physical therapy, and exercise for FSHD can improve health and overall function in many individuals.
Wellness

Disability and unpredictability take a toll on mental health and well-being. Learn how to manage stress and anxiety and find happiness.
Research

Understanding research can guide best practices in care and empower you to engage in impactful ways with research and drug development.
FSHD University video playlist
Looking for Sequester Camp? Our weekly program of health, fitness, and research webinars launched at the start of the Covid-19 lockdown (March-June 2020). Access all that great information HERE.
Disclaimer
Information provided by the FSHD Society does not imply an endorsement of any of the drugs, procedures, treatments, or products discussed. Please consult your own healthcare provider about any medical interventions.