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FSHD University

Home / FSHD University
FSHD University
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FSHD University is your center for education about the art and science of living with FSH muscular dystrophy.

We focus on three "departments"  – Physical Health, Wellness, and Research – drawing on the many resourceful, creative people in our community who have earned their MDs and PhDs in living with FSHD. Over time, we expect to establish new departments to address additional areas where we see a thirst for knowledge. Your input and suggestions are very much welcome.

This is YOUR university!

Calendar of Upcoming Events

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Today

December 2023

Thu 21
FSHD University Logo
Featured Featured Dec 21 @ 1:00 pm - 2:00 pm

FSHD University – Annual drug development update

Zoom Web Conference , United States

1:00 PM ET | noon CT | 11:00 AM MT | 10:00 AM PT Dr. Nicholas Johnson Every year, we bring you an update on therapy development for FSHD. What... Read More »

January 2024

Thu 18
Featured Featured Jan 18, 2024 @ 11:00 am - 12:00 pm

Treating FSHD – A broader view

Zoom Web Conference , United States

With Nicol Voermans, MD PhD, and Nathaniël Rasing, MD 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT While... Read More »

February 2024

Thu 15
Featured Featured Feb 15, 2024 @ 12:00 pm - 1:00 pm

Breathing with FSHD, Andrea Klein

Zoom Web Conference , United States

Breathing with FSHD, Andrea Klein 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT Today’s webinar discusses how to... Read More »

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Departments

Physical Health

Physical Health in FSHD

Best practices in medical care, physical therapy, and exercise for FSHD can improve health and overall function in many individuals.

Learn more

Wellness

Mental Health in FSHD

Disability and unpredictability take a toll on mental health and well-being. Learn how to manage stress and anxiety and find happiness.

Learn more

Research

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Understanding research can guide best practices in care and empower you to engage in impactful ways with research and drug development.

Learn more

FSHD University video playlist

  • MOVE and MOVE+ FSHD Update with Michaela Walker

    MOVE and MOVE+ FSHD Update with Michaela Walker

  • Physical Therapy for Shoulder Issues in Kids with Maaike Pelsma

    Physical Therapy for Shoulder Issues in Kids with Maaike Pelsma

  • FSHD Experiences: Insights from Europe with Megan McNiff

    FSHD Experiences: Insights from Europe with Megan McNiff

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Disclaimer

Information provided by the FSHD Society does not imply an endorsement of any of the drugs, procedures, treatments, or products discussed. Please consult your own healthcare provider about any medical interventions.

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General Mailing Address:

75 North Main Street, Suite 1073
Randolph, MA 02368 U.S.A.

Mail Donations to:

FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

(781) 301-6060

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