The FSHD Society wants to make sure the FDA fully understands what our community wants so that any potential new treatments are evaluated with the patients’ needs and wants in mind. The FSHD Society is engaging the FDA in conversations that help them to understand the patient experience and what is meaningful in a future treatment. A better appreciation of the disease, and the experience of living with it, will lead to more effective reviews of future drugs. Follow the links below to learn more about how we’re educating the FDA about FSHD.