Local Chapters

Find Strength in Community

Our local chapters allow you to connect with others who understand FSHD, support you in your journey, and provide you with valuable resources and information to keep you informed. Whether you’re living with FSHD, or supporting a loved one, our chapters offer a caring community to face FSHD together. These chapters also give you a place to learn, share experiences, and raise your voice to make a difference in improving care, and advancing research and treatments for everyone affected by FSHD.

What Chapters Offer

  • Support & Connection – Make friends with people who understand what it’s like to live with FSHD. You’re not alone.
  • Shared Local Resources – Get recommendations from others on helpful services, care ideas, and local community support.
  • Meetings & Events – Join group discussions on important topics and share ideas with others who understand FSHD.
  • Conversation & Insights – Stay informed on FSHD news, programs, research, and topics to help enhance daily life.
  • Collective Impact – Your involvement helps strengthen our voice and contributes to fundraising and research efforts.

Find a Chapter Near You

Looking for a chapter? Search our directory! If you do not have one listed near your area and want to connect locally with a chapter, or are interested in starting a new chapter, contact us.

International FSHD and Muscle Disease organizations

Learn more about the World FSHD Alliance

Other Helpful Resources