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FSHD Canada Foundation has partnered with the FSHD Society to support and grow the FSHD Communities across Canada with the shared goal to deliver treatments and a cure for FSH Muscular Dystrophy.
The Alberta chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.
Join your local chapter and learn how we can support you on your FSHD journey.
Karen Camarta is excited to be co-directing the Alberta Chapter with her sister Jennie. With FSHD in her family, Karen started noticing signs of the disease in her twenties, though she has been fortunate to experience only mild symptoms so far. She is passionate about connecting with others affected by FSHD and working to spread understanding within her local community.
Karen lives in Calgary with her amazing husband and daughter. She loves to travel, explore nature, and discover new cultures around the world. Karen is proud to support the Alberta Chapter and the FSHD community as they continue to grow and strengthen their connections.
Contact Karen & Jennie directly or visit the Alberta Facebook page.
Jennie Camarta is proud to co-direct the Alberta Chapter alongside her sister Karen. Diagnosed with FSHD in her early twenties, Jennie has always known she had the condition. Despite the challenges of FSHD, she leads an active lifestyle, enjoying time in the Rocky Mountains, traveling, and spending time with her nieces and nephews.
Jennie and her husband, Nick, have been married for over 15 years and live in Calgary. When she’s not planning her next adventure, Jennie works as a Registered Nurse caring for veterans. She is dedicated to supporting her local FSHD community and looks forward to building stronger connections with others affected by the disease.
Contact Karen & Jennie directly or visit the Alberta Facebook page.
While Karen & Jennie are powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.
We are getting together to celebrate World FSHD Day. We are going to meet for drinks and dinner, staying up to see the lighting of the Calgary Tower in ORANGE! Family friendly!
The Walk & Roll to Cure FSHD is the FSHD Society’s largest, annual fundraiser raising awareness and funds for treatments and a cure for FSHD.
