Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
The Dakotas chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.
Join your local chapter and learn how we can support you on your FSHD journey.
Bryan Domholt is dedicated to supporting people and families affected by FSHD. His goal for the Dakotas Chapter is to create a space where members can connect, share their experiences, and find ways to better manage the challenges of the condition.
Bryan believes that having a local support group will help members build meaningful relationships and provide valuable support to one another. Through raising awareness in local communities and organizing fundraising efforts, Bryan is committed to making a positive impact for those affected by FSHD and helping the chapter grow to reach even more people.
Contact Bryan directly or visit the Dakotas Facebook page.
While Bryan is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.
