Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
The Idaho chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.
Join your local chapter and learn how we can support you on your FSHD journey.
Minette comes from a family with a strong history of FSHD. She and six of her eight siblings inherited the disorder from their father and grandmother, thus shaping not only her life but also the lives of her immediate and extended family.
Having people around her who understand her struggles has been a great source of strength. As a chapter director, Minette hopes to offer that same support to others, helping them feel connected to their FSHD family. She believes that, as brothers and sisters in this journey, we can all lift each other up.
Contact Minette directly or visit the Idaho Facebook page.
While Minette is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.
