Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
The Michigan chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.
Join your local chapter and learn how we can support you on your FSHD journey.
Andrea (Dre) Vanbeek and her sister, Alissa Lowman, are the Co-Chapter Directors for the Michigan chapter. In September 2021, Dre’s son, Crew, was diagnosed with FSHD Type I at the age of 12. This diagnosis led Dre and Alissa to dive into research and find ways to support Crew and others facing the same challenges. Their goal is to connect families with resources, information, and a community of support, offering hope in a time of uncertainty.
Dre lives in West Michigan, where she works as a registered nurse and is a proud mom of four children, including Crew. Alissa lives in the Detroit area, where she recently retired from teaching and has three children. Both Dre and Alissa are passionate about helping families navigate the journey of FSHD and raising awareness in their community.
Contact Dre & Alissa directly or visit the Michigan Facebook page.
While Dre & Alissa are powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.
