Our look is new. Our purpose is the same. Learn more about our brand evolution.
Our look is new. Our purpose is the same. Learn more about our brand evolution.
The Minnesota chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.
We provide support, share local resources, and keep you informed on the latest research and care. Whether you’re newly diagnosed or have been living with FSHD for years, we’re here to support you, every step of the way.
Join your local chapter and learn how we can support you on your FSHD journey.
Jacob Wise lives in Edina, MN, with his wife and three children. He was diagnosed with FSHD in 2001 at the age of 23. As his condition progressed, Jacob felt a strong desire to give back to the FSHD community. When the opportunity arose to help create a Minnesota Chapter, he was eager to contribute and use his experience to support others.
Jacob is excited to connect with others affected by FSHD, share resources, and build a local support network. He is dedicated to advancing treatments for FSHD by fostering a strong, supportive community.
Contact Jacob directly or visit the Minnesota Facebook page.
While Jacob is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.
Contact Beth Johnston, Chief of Volunteer Leadership to learn how you can make an impact and get involved.
