Remembering Dan Perez, co-founder of the FSHD Society and a driving force in FSHD research and advocacy.

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8 events found.

St. Louis Chapter

« All Events
Email StLouisChapter@fshdsociety.org
Website https://www.fshdsociety.org/connect/local-chapters/st-louis-chapter/
Events from this organizer
Today
  • September 2023
  • Sat 23
    2023 Walk and Roll Calendar Feature
    Featured Sep 23, 2023 @ 9:00 am - 1:00 pm

    St. Louis Walk & Roll

    Hawk Ridge Park 8392 Orf Road, Lake St. Louis, MO, United States

    St. Louis Walk & Roll Saturday, September 23, 2023 9am-Registration/10am-Walk&Roll Hawk Ridge Park/Zachary's Playground, 8392 Orf Road, Lake Saint Louis, MO 63367 Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to […]

  • December 2023
  • Sat 16
    Dec 16, 2023 @ 2:00 pm - 5:00 pm

    St. Louis Chapter Holiday Gathering

    4Hands Brewery 17081 N Outer 40 Rd, Chesterfield, United States

    St. Louis Chapter Holiday Gathering  DATE: Saturday, December 16, 2023 TIME: 2:00pm - 5:00pm CT WHERE: 4Hands Brewery, 17081 N Outer 40 Rd, Chesterfield, MO 63005 DETAILS: Join us for a special holiday gathering to celebrate the wonderful work our chapter has done this year, the opportunity to connect with one another, and start brainstorming how we can […]

  • August 2024
  • Tue 20
    In-person Chapter Meeting
    Aug 20, 2024 @ 7:00 pm - 8:00 pm

    St. Louis Chapter In-Person Support Meeting

    Webster Groves Public Library - 301 E Lockwood Ave, Webster Groves, MO 63119 East Lockwood Avenue, St. Louis, MO, United States

    St. Louis Chapter In-Person Support Meeting Tuesday, August 20th, 2024, 7:00-8:00pm CT Webster Groves Public Library - 301 E Lockwood Ave, Webster Groves, MO 63119 We invite all of our St. Louis Chapter members to join us on Tuesday, August 20th for our upcoming Chapter Meeting at Webster Groves Public Library. During this time, our […]

  • September 2024
  • Sat 14
    Sep 14, 2024 2024 W&R

    2024 StL Walk & Roll to Cure FSHD

    Hawk Ridge Park 8392 Orf Road, Lake St. Louis, MO, United States

    2024 StL Walk & Roll to Cure FSHD Saturday, September 14, 2024 Memorial Park * Pavillion 1, 8600 Strassner Dr, Brentwood, MO 63144 Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access […]

  • December 2024
  • Sat 7
    Social hour for local chapter
    Dec 7, 2024 @ 2:00 pm - 4:00 pm

    St. Louis Chapter Holiday Gathering

    4Hands Brewery 17081 N Outer 40 Rd, Chesterfield, United States

    St. Louis Chapter Holiday Gathering Saturday, December 7th, 2:00-4:00pm CT 4Hands Brewery, 17081 N Outer 40 Rd, Chesterfield, MO 63005 RSVP: https://go.fshdsociety.org/l/701273/2023-06-22/43jsb5 Join us for a special holiday gathering to celebrate the wonderful work our chapter has done this year and the opportunity to connect with one another. Refreshments and food will be provided. Family […]

  • April 2025
  • Tue 22
    FSHD Virtual Chapter Meeting
    Apr 22 @ 6:00 pm - 7:00 pm 2025 Chapter Meetings

    St. Louis Chapter Virtual Meeting

    Zoom Virtual Meeting , United States

    St. Louis Chapter Virtual Meeting Tuesday, April 22, 2025 at 6:00 pm Virtual via Zoom (link will be sent upon receipt of RSVP) DETAILS: Please join us for conversation and support. RSVP: https://go.fshdsociety.org/l/701273/2023-03-01/42xfv2

  • June 2025
  • Fri 20
    Jun 20 @ 5:30 pm - 7:30 pm 2025 World FSHD Day

    St. Louis World FSHD Day Celebration

    Hawk Ridge Park 8392 Orf Road, Lake St. Louis, MO, United States

    St. Louis World FSHD Day Celebration 5:30-7:30pm at Hawk Ridge Park (Zachary's Playground) - 8392 Orf Road, Lake Saint Louis, MO 63367 You're invited to our upcoming picnic in celebration of World FSHD Day! We'll also host this event as an official kick-off to our 2025 Walk & Roll season. The picnic will be BBQ-style. […]

  • September 2025
  • Sat 20
    Sep 20 2025 Walk & Roll

    St. Louis Walk & Roll to Cure FSHD

    2025 St. Louis Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]

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العربية Afrikaans Deutsch Ελληνικά Español de Argentina Español Español de México Français du Canada Français עִבְרִית हिन्दी Italiano 한국어 Nederlands (België) ਪੰਜਾਬੀ 简体中文 Tiếng Việt Türkçe