Welcome to the St. Louis Chapter!
Thank you for visiting the St. Louis Chapter of the FSHD Society! We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
A huge THANK YOU to everyone who walked, rolled, donated, and showed up on Saturday, September 17th in Hawk Ridge Park in Lake Saint Louis, Missouri! We are thrilled to announce that we achieved our goal of raising over $15,000!!! There is still time to contribute, and you can do so here: https://team.fshdsociety.org/stlouiswalkroll
Want to know more about the Walk & Roll? Learn More