Lighting the Way to a Cure

CANCELLED: Tampa Chapter Meeting

In light of COVID-19 concerns, we will be cancelling the April meeting of the Tampa chapter. We encourage you to join in some upcoming virtual events: Join the Society's weekly online check-in (Sequester camp!): Learn more here! April 3rd virtual meeting of the Atlanta Chapter (Info & RSVP here!) We will be back together soon... Read More »

Tampa Virtual Chapter Meeting

tampa Florida

Thursday, June 18, 2020 7:00pm-8:00pm Eastern Time JOIN THE ZOOM MEETING HERE Please join us for a Virtual Chapter Meeting! This will be a great opportunity to “see” how everyone is doing and talk about upcoming events, such as World FSHD Day, FSHD Connect Classroom, Voice of the Patient, and the Virtual Nationwide Walk &... Read More »

Tampa Walk & Roll to Cure FSHD

Tampa Tampa, FL

Please mark your calendars: The 2020 Tampa Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Jane Pollock, with any questions! She can be reached at We look forward to "seeing" you on September 12th!

Southeast Regional Virtual Year-End Party!!

Atlanta, GA Atlanta, GA

Join Us Virtually HERE We’re trying something new, and we hope you’ll join us: You’re invited to the Southeast Regional Virtual Year-End Party!! We wanted a chance to visit with friends – and meet new ones in our part of the world – before 2021, and we all could use a little lighthearted fun. So... Read More »

Southeast Chapters Meeting with Jamshid Arjomand

Atlanta, GA Atlanta, GA

Virtual Chapter Meeting with Jamshid Arjomand Wednesday, March 31, 2021 5:00pm-6:00pm Eastern Time JOIN THE ZOOM MEETING HERE Have a question about the genetics behind FSHD? Curious about the state of research in the FSHD field? Please join us on Monday, March 29th for a Q&A meeting with the FSHD Society’s Chief Science Officer, Dr.... Read More »

Tampa and Southwest Florida Virtual Chapter Meeting


Saturday, May 29, 2021 12:00pm Eastern Time JOIN THE ZOOM MEETING HERE   Please mark your calendars for a joint meeting of the Tampa and Southwest Florida chapters. We look forward to getting our groups together to connect, share resources, and support each other! We also have a special guest speaker: We will be joined... Read More »

Targeting a Cure

Tampa Bay Sporting Clays 10514 Ehren's Cutoff, Land O'Lakes, FL

Join Us on Saturday, October 2, 2021 George Pollock Jr, Founder of the FSHD Cycling Team, is hosting the first annual "Targeting a Cure for FSHD" to raise awareness and funds for FSH Muscular Dystrophy (FSHD). This will be a great day to re-connect with friends - old and new! Join us to shoot, to... Read More »