Lighting the Way to a Cure

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Welcome to the Tampa Chapter!

Thank you for visiting the Tampa Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Volunteer Spotlight: George Pollock

Meet your local Board Member, George Pollock, who also serves as the Chair of the Community Engagement Committee. He describes his journey with FSHD as well as his motivation for his work.

Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in Tampa, we are making plans to build on the success of last year's walk and hope you will join us!

Want to help plan or organize the Tampa Walk & Roll to Cure FSHD? I'd love to have you! Let me know at TampaChapter@FSHDSociety.org

Want to know more about the Walk & Roll? Learn More

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To contact us directly, please email: TampaChapter@fshdsociety.org

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Please join us! Simply fill out the form in the sidebar to become a member of the Tampa chapter.

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Jane Pollock

JANE POLLOCK

Chapter Director

 I am excited to be leading the Tampa Chapter of the FSHD Society. My husband, George, was diagnosed in 2006. He is the first person in his family to have FSHD.  We found the FSHD Society to be a great resource and found support among its members. We wanted to help spread the word to other patients and their families about the work being done by the society.  George is involved on the FSHD Society’s Board, and I wanted to contribute in my own way towards connecting families and helping to find and fund a cure.

We are currently “empty nesters” and enjoy spending as much time outdoors as we can.  Our daughter, Emily, works as an engineer in California, and our son, Jacob, is a college student in Ft. Myers, Florida. We are also “parents” to our little Pomeranian, Diamond.

I am looking forward to creating a strong and active FSHD community that will advocate and provide support for those diagnosed with FSHD.

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live strong, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

Sign up today!