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Tampa Chapter

Home / Connect / Local Chapters / Tampa Chapter

Welcome to the Tampa Chapter!

Thank you for visiting the Tampa Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Volunteer Spotlight: George Pollock

Meet your local Board Member, George Pollock, who also serves as the Chair of the Community Engagement Committee. He describes his journey with FSHD as well as his motivation for his work.

https://www.fshdsociety.org/wp-content/uploads/2021/05/georgepollock.mp4

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To contact us directly, please email: TampaChapter@fshdsociety.org

Don’t forget to follow us on FACEBOOK

 

Please join us! Simply fill out the form in the sidebar to become a member of the Tampa chapter.

Upcoming Events

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Today

September 2023

Thu 28
FSHD Radio Show Hot off the Press logo with microphone
Featured Featured Sep 28 @ 8:00 am

FSHD Radio: Hot off the Press – Mel Hayes of Fulcrum Therapeutics on the REACH Trial

Facebook and YouTube

Thursday, September 28th  14:00 PM CET | 13:00 PM UK | 8:00 AM ET | 7:00 AM CT | 6:00 AM MT | 5:00 AM PT Earlier this month, Fulcrum... Read More »

Thu 28
Featured Featured Sep 28 @ 12:00 pm - 1:00 pm Event Series Feeling Fit with FSHD

Feeling Fit with FSHD – Why exercise?

18:00 PM CET | 17:00 PM UK | 12:00 PM Noon ET | 11:00 AM CT | 10:00 AM MT | 9:00 AM PT Join us for our second session of... Read More »

October 2023

Wed 4
Featured Featured Oct 4 @ 5:00 pm - 6:00 pm Event Series Women on Wellness

Women on Wellness – Adaptive cooking

Zoom Virtual Meeting , United States

First Wednesday of every month 5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT Adaptive cooking and adaptive eating will be our topic this... Read More »

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National FSHD Society chapter program sponsor
Jane Pollock

JANE POLLOCK

Chapter Director

 I am excited to be leading the Tampa Chapter of the FSHD Society. My husband, George, was diagnosed in 2006. He is the first person in his family to have FSHD.  We found the FSHD Society to be a great resource and found support among its members. We wanted to help spread the word to other patients and their families about the work being done by the society.  George is involved on the FSHD Society’s Board, and I wanted to contribute in my own way towards connecting families and helping to find and fund a cure.

We are currently “empty nesters” and enjoy spending as much time outdoors as we can.  Our daughter, Emily, works as an engineer in California, and our son, Jacob, is a college student in Ft. Myers, Florida. We are also “parents” to our little Pomeranian, Diamond.

I am looking forward to creating a strong and active FSHD community that will advocate and provide support for those diagnosed with FSHD.

Stay Informed on Chapter Activities!

Join the world’s largest network of patients, families, clinicians, researchers, and friends advocating for FSH muscular dystrophy. Let us know you want to be a part of the local chapter and you'll never miss a meeting or event notice.

When you sign up you'll receive the latest word on clinical trials, information on how to live a better life, and about local events that will connect to our remarkable community. You will also have the option to join our patient contact registry.

If you want to know more about this and why it is so important, learn more HERE

Your personal information will be kept strictly confidential.

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Randolph, MA 02368 U.S.A.

Mail Donations to:

FSHD Society
P.O. Box 411617
Boston, MA 02241-1617

(781) 301-6060

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