Welcome to the Tampa Chapter!

Thank you for visiting the Tampa Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.

Volunteer Spotlight: George Pollock

Meet your local Board Member, George Pollock, who also serves as the Chair of the Community Engagement Committee. He describes his journey with FSHD as well as his motivation for his work.

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To contact us directly, please email: TampaChapter@fshdsociety.org

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Jane Pollock

JANE POLLOCK

Chapter Director

 I am excited to be leading the Tampa Chapter of the FSHD Society. My husband, George, was diagnosed in 2006. He is the first person in his family to have FSHD.  We found the FSHD Society to be a great resource and found support among its members. We wanted to help spread the word to other patients and their families about the work being done by the society.  George is involved on the FSHD Society’s Board, and I wanted to contribute in my own way towards connecting families and helping to find and fund a cure.

We are currently “empty nesters” and enjoy spending as much time outdoors as we can.  Our daughter, Emily, works as an engineer in California, and our son, Jacob, is a college student in Ft. Myers, Florida. We are also “parents” to our little Pomeranian, Diamond.

I am looking forward to creating a strong and active FSHD community that will advocate and provide support for those diagnosed with FSHD.

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