Welcome to the Tampa Chapter!
Thank you for visiting the Tampa Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
Volunteer Spotlight: George Pollock
Meet your local Board Member, George Pollock, who also serves as the Chair of the Community Engagement Committee. He describes his journey with FSHD as well as his motivation for his work.
Our international Walk & Roll Celebration Livestream will take place on Saturday, September 17, 2022. Here in Tampa, we are making plans to build on the success of last year's walk and hope you will join us!
Want to help plan or organize the Tampa Walk & Roll to Cure FSHD? I'd love to have you! Let me know at TampaChapter@FSHDSociety.org
Want to know more about the Walk & Roll? Learn More