Welcome to the Tampa Chapter!
Thank you for visiting the Tampa Chapter of the FSHD Society which officially launched in May 2019. We are here to build a local community of patients, family and friends, and help them connect and advocate for themselves and each other. Our hope for the future is to find a cure – Until then, we hope to bring a greater awareness to the community, and to help improve the quality of life of all those affected.
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The Tampa Walk & Roll to Cure FSHD
Our 2020 Walk & Roll has gone VIRTUAL! Please join us, and invite your family and friends from wherever they are to join us too!
We will "see" you on Saturday, September 12, 2020 - when all of our Chapters nationwide will join together!
Click the button below to register or donate!
All of our worlds have been highly impacted by the corona virus pandemic, yet our commitment to our families remains the same. This is why we must continue to move forward!
To contact us directly, please email: TampaChapter@fshdsociety.org
Don’t forget to follow us on FACEBOOK
Please join us! Simply fill out the form in the sidebar to become a member of the Tampa chapter.
Upcoming Events
Aug
20
Webinar on scapular stabilization surgery
Dr. Anthony Romeo NOTE CHANGE OF DATE. Join us for our webinar on scapular stabilization surgery at 1:00 pm ET | 12:00 pm CT | 11:00 am MT | 10:00 am PT. One of the classic symptoms of FSHD is "scapular winging." The muscles around the shoulder blade (scapula) weaken and allow the bone to jut out like an angel's wing. This can cause pain and prevent a person from being able to raise the arm. A solution that works…
Find out more »Sep
12
Tampa Walk & Roll to Cure FSHD
Please mark your calendars: The 2020 Tampa Walk & Roll to Cure FSHD has gone VIRTUAL! We will see you on Saturday, September 12, 2020 Please reach out to the Chapter Director, Jane Pollock, with any questions! She can be reached at TampaChapter@fshdsociety.org We look forward to "seeing" you on September 12th!
Find out more »Dec
2
FSHD Society Radio
Tim Hollenback, FSHD Radio host 9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT Join host Tim Hollenback on Facebook Live on the first Wednesday evening every month. During the hour-long program, you'll get to meet fascinating guests discussing a wide range of topics of interest to our community. Mark your calendar. Invite your friends to a listening party and chat with fellow Facebook listeners in the comments section. Call Tim with your questions…
Find out more »
JANE POLLOCK
Chapter Director
I am excited to be leading the Tampa Chapter of the FSHD Society. My husband, George, was diagnosed in 2006. He is the first person in his family to have FSHD. We found the FSHD Society to be a great resource and found support among its members. We wanted to help spread the word to other patients and their families about the work being done by the society. George is involved on the FSHD Society’s Board, and I wanted to contribute in my own way towards connecting families and helping to find and fund a cure.
We are currently “empty nesters” and enjoy spending as much time outdoors as we can. Our daughter, Emily, works as an engineer in California, and our son, Jacob, is a college student in Ft. Myers, Florida. We are also “parents” to our little Pomeranian, Diamond.
I am looking forward to creating a strong and active FSHD community that will advocate and provide support for those diagnosed with FSHD.
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