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New York, NY / September 25, 2012 For years, Steven Blier has occupied the limelight as a celebrated pianist and advocate for the art song. He has toured with opera superstars like […]
A Festive Evening of Song, at the New York Botanical Garden, Monday, September 24, raised nearly $250,000 for FSHD research More. Many thanks to Steven Blier, Kelli O’Hara, Judy Seslowe, […]
Highlights include: Introduction of June Kinoshita, the new Executive Director of the FSHD Society. She describes a plan to raise visibility of FSH muscular dystrophy. Atlanta Patient-Researcher meeting. The state […]
June Kinoshita joins the FSH Society as Executive Director
Important paper on FSHD published in Human Molecular Genetics by scientists at the BBRI NIH NICHD Sen. Paul Wellstone MDCRC for FSHD. The distinct message in the paper is that DUX4-fl expression is necessary […]
