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by Heather Green There are moments in every life that are defining. We can live weeks, months, and years sometimes without having anything memorable happen, then in a flash, our […]
How DUX4 could cause FSHD without actually being there BY AMANDA HILL, HIGHLANDS RANCH, COLORADO In the FSHD research field, there is an emerging idea that the damage caused by […]
Those of us who spend (too much) time on Facebook may recall the envy-inducing photos posted last summer by Carden Wyckoff as she traveled solo with her wheelchair across Europe. […]
by Gholamhossein Amini Chermahini, MD, Columbus, Ohio Editor’s Note: Dr. Amini Chermahini and his colleagues were awarded the Best Poster Prize at this year’s FSHD International Research Congress. Here he […]
Here’s a solution to a delicate problem: the Stand Aid PTA, or power-toilet assist. Several of our members have raved to us about this “life-changing invention” that restores independence and […]
