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By Tiffany Zimmerman, Deltona, Florida I don’t think any of my work as an artist really focuses on my having FSHD. I do feel, however, that my art and creativity […]
A few years ago, James Partridge, a long-time FSHD Society member, decided to re-boot his career and pursue his passion for the blues. His home city of Ann Arbor, Michigan, […]
UPDATED 8/9/19 Fulcrum Therapeutics has posted on clinicaltrials.gov information about its upcoming clinical trial of losmapimod. The trial is NOT YET RECRUITING volunteers. People can monitor the clinicaltrials.gov site regularly […]
Marseille meeting convenes delegates from 11 nations BY SHEILA HAWKINS, TRUSTEE, MUSCULAR DYSTROPHY UK FSH muscular dystrophy affects people of every nation and ethnicity, and the effort to develop treatments […]
At the 26th annual FSHD International Research Congress (IRC) this June 19-20, held in a 19th-century palace overlooking the harbor of Marseille, the 180 attendees were treated to a spectacular […]
