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Explore blog posts, educational webinars, and upcoming events focused on the latest Research Updates.
Taking back control of my destiny through research By Heloise Hoffmann, Standford University For the past year, I have been working alongside a team of fellow undergraduates at Stanford University […]
We need YOU – to write to your senators by Anna Gilmore, FSHD Society Last year was an exciting one for our community as we launched our first FSHD Day […]
Letter from Avidity Biosciences to the FSHD community: Dear FSHD Community, Today, we are very pleased to share with you that we have completed enrollment in the biomarker cohort in […]
Breathing with FSHD, Andrea Klein 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00 AM PT Today’s webinar discusses how […]
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT This month, we welcome Isaac and Ora Prilleltensky, who literally wrote the book on How […]
11:00 am ET | 10:00 am CT | 9:00 am MT | 8:00 am PT How does nutrition impact the symptoms and progression of FSHD? This week, the group will […]
With Nicol Voermans, MD PhD, and Nathaniël Rasing, MD 19:00 CET | 18:00 UK | 1:00 PM ET | 12:00 PM CT | 11:00 AM MT | 10:00am PT While […]
