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Fulcrum Therapeutics has announced successful completion of patient enrollment in REACH Phase 3 trial The FSHD Society is thrilled to announce a significant milestone in the battle against FSHD. Fulcrum […]
[…] stress, illness, and disability. This is being offered as a pre-conference activity of the 2018 FSHD Connect. If you wish to attend, RSVP to Robyn O’Leary at robyn.oleary@fshdsociety.org. Thank you! […]
Get involved with research! FSHD-affected and FSHD-unaffected volunteers needed for research study using (MRI) and magnetic resonance spectroscopy (MRS) imaging in skeletal muscle at KKI, Baltimore, Maryland. Learn more about […]
Several genetic diagnostics labs now offer a test called whole-genome optical mapping for FSHD Type 1. Some also offer a neuromuscular panel that includes FSHD Type 2. These are major […]
[…] years ago, as we started to hear about clinical trials for promising new drugs for FSHD, I was frustrated to learn that my son Sam was too young to participate. […]
