Our look is new. Our purpose is the same. Learn more about our brand evolution.
[…] it reminded me just how much is still out there to see.” Don’s connection to FSHD runs deep. His family is affected and has known about the disease since the […]
[…] Zoom community hosts twice-monthly Zoom sessions about exercises tailored to the needs of individuals with FSHD. The group hosted recent discussions about the role of personal trainers and how they […]
[…] and cognitive behavioral therapy (CBT) decreased fatigue and improved the quality of life significantly in FSHD patients. Now, the same group has published a study demonstrating that not only did […]
[…] horizon. Avidity Biosciences, Dyne Therapeutics, Arrowhead Pharmaceuticals, Roche, miRecule, and other companies are actively pursuing FSHD therapies. On a personal note, allow me to express my appreciation to the hundreds […]
[…] MD PhD Lilleen Walters and Kathryn Wagner I lost my dear friend, Lilleen Walters to FSHD in August. Lilleen and I met approximately 20 years ago when she and her […]
