Join radio host Tim Hollenback via Facebook Live on Wednesday, December 18, at 9:00 PM EST – topic TBD
FSHD Radio – December show
Webinar: The ABC’s of clinical trials with Dr. Rabi Tawil
This year, Acceleron’s ACE-083 drug is expected to complete its phase 2b trial, and Fulcrum is conducting its trial of the first drug intended to repress DUX4, the gene implicated in causing FSHD. This is a good time to brush up on the vocabulary of clinical trials and the FDA approval process, and learn how… Read More »
Daytona Beach Chapter Meeting
We are excited to be holding our first member meeting as a new chapter! This is a friendly, confidential meeting where you can share and learn from one another about local resources, tips and tricks for coping with the physical and psychological challenges, and offer and receive support. There will be finger foods served. There is a nearby restaurant where… Read More »
HAT Trick to Block the DUX4 Gene
Researchers Identify a New Compound that Inhibits the Activity of DUX4 By Alec DeSimone, PhD University of Massachusetts Medical School Led by a team at the University of Minnesota, Minneapolis, researchers have identified a new compound that inhibits the activity of DUX4, implicated as the root cause of facioscapulohumeral muscular dystrophy (FSHD). The compound provides… Read More »
Walk Pioneers Lead the Way!
This September and early October, the FSH Society will host its new signature fundraising event, the Walk & Roll to Cure FSHD in five communities from coast to coast. These Volunteer Leaders are paving the way for their communities to raise funds and increase awareness! 5 Brave Walk Pioneers have agreed to attend monthly training sessions, beta-test… Read More »