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[…] around specific muscular dystrophies in the age of genomic medicine. Dr. Brout’s grandfather, who had FSHD, co-founded the Muscular Dystrophy Association. When she was diagnosed recently with FSHD, she became […]
[…] Felice, MD, Chief of the Department of Neuromuscular Medicine Last week some members of the FSHD Society and I attended the Community Advisors Gathering at the Hospital for Special Care […]
[…] about the Polar Vortex. Twenty-nine chapter directors and Walk & Roll leaders convened for the FSHD Society’s inaugural volunteer leadership summit for two days of intensive learning, sharing, and networking […]
[…] method, which one of our new Dallas-area members has found very beneficial in addressing his FSHD issues. Note that these methods have not been studied scientifically for efficacy in FSHD; […]
This year-end webinar by FSHD Society CEO Mark Stone is a must watch. He lays out our detailed strategy that will get treatments for FSHD to our families by the […]
