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Our 2018 FSHD Connect conference was held at the Flamingo Las Vegas on June 9-10, 2018. The conference gathered together 400 patients, family members, researchers, physicians, and health experts for […]
Italian brothers’ ordeal sparks a global movement As we approach our third annual World FSHD Day this June 20th, and the international FSHD community plans to flood their social channels […]
[…] granted Fast Track designation to AOC 1020 for the treatment of facioscapulohumeral muscular dystrophy ( FSHD). FSHD is a serious, rare, hereditary muscle-weakening condition marked by life-long, progressive loss of […]
In his keynote lecture from this year’s International Research Congress on FSHD, held virtually on June 25-26, George Padberg, MD, regarded as the father of modern FSHD research, shared observations […]
[…] of genetic tests assessing disease-associated chromosomal abnormalities. Their lead indication is Facioscapulohumeral Muscular Dystrophy ( FSHD). FSHD is one of the most prevalent forms of muscular dystrophy and affects approximately […]
