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[…] fight back against FSH muscular dystrophy. Most of my friends and family know I have FSHD. This isn’t a new diagnosis, and living fully with this disease has kept me […]
[…] in Baltimore, Maryland. During that surgery I had the privilege to donate muscle tissue for FSHD research. The donation itself was relatively simple. The paperwork prior to the surgery was […]
[…] Committee will miss seeing you in person this year. Why we do what we do. FSHD can rob you of your ability to smile. Weaken your legs so you can’t […]
Our first-ever FSHD 360 in Ontario, Canada, was a great success, with more than 70 attendees filling the Burnhamthorpe Community Centre in Mississauga on May 3, 2025. We’re delighted to […]
